Monday, April 22, 2013

Sophie's ASL Lesson with Daddy

Sophie's signing has really taken off this month.  I know, I've been saying that every months for the last 6 months, but she really is signing up a storm.

Here's some video of sign language lessons with Daddy today:


     MORE CRACKER:  http://youtu.be/qX2uZDWggDk


     DOG BATH:   http://youtu.be/kWUZ6yFgAxI



I'm keeping the SOPHIE SIGNS up to date, but I thought these were too fancy not to share in a post as well :)

Thursday, April 18, 2013

Surgery #2 Complete!

Another big day for Sophie!   Today we took Sophie in for her second cochlear implant.  Left ear this time.  Doc said it took a bit longer but everything went perfectly.  Two very nice Cochlear reps and our favorite audiologist were all in the operating room and were wonderful support.  We had a lovely nurse from Kona who cared for Sophie in post-anesthesia care.   I'm glad she only has two ears as I really couldn't take another one of these.

This kid is really something special.  After all of this medical stuff, hardly a fuss. Here are some pics:

Taking my vitals
Sticking close to Mom
Playing in the toy room
Waving hi to new friends
Mom needs to get me one of these!
Dad in his marshmallow suit just before surgery.
All done! Heading home :)

Wednesday, April 17, 2013

I love the remote!



I have to eat my words. After a week, I'm hooked on this remote. It beeps to tells me when coils fall off and batteries are low and I can watch the mic activity without seeing the processor. I also feel more interactive. We were given 4 programs to work through and got through 3 of them. It's nice to be able to set our own pace with Sophie's CIs.




So after a 9 month battle with hearing aids, keeping these things on Sophie's head is super hard as well.  We have a 4 component solution:
  • Long coil cable (2 day shipping via fedex)
  • Cochlear Litewear...just the clip
  • Bebopshop (the cupcake clip on the pink tether from etsy) CI holder to ensure the processor stays on if gets pulled out of the litewear clip (happens a lot)
  • Pilot's cap










Tomorrow is a huge day for us...Second mapping appointment, pre-op pediatrician visit, and Cochlear America is in town and doing a parent seminar on the Nucleus 5.  Second Surgery is Thursday so we have a very exciting week ahead!


Friday, April 12, 2013

Sophie's Activation Day!


What a big day for us.  We waited 3 weeks after Sophie's surgery to get her activated and start her mapping.  It felt like forever but it was worth the wait.

The mapping process was pretty quick.  The audiologist started with tones from a computer program and later turned on her microphones so we could talk to Sophie while she adjusted the maps.
Our CI comes with a remote so we were sent home with 4 programs to run through over the next couple of weeks.  Each program gets progressively louder and we can up the volume at will.  Pretty nifty!

We spent most of our time getting oriented to the new technology.  We'll get that wired over the next week or so.  Our big issue now is getting Sophie to keep her coil (round headpiece) on.  We've been experimenting with hats and headbands already and we may even try some toupee tape.

So much to learn and just one more week until Sophie's second surgery!

Here's the activation video.